jen groeber: mama art

4 kids in 3 years: reflections on motherhood, art and life.

I love the word retarded, and it’s a complicated love.

Butchie, 1992

Butchie, 1992

I love the word retarded, and it’s a complicated love.

Third-Grade Me: “Blah, blah, blah, my retarded brother.”

In my memory time stands still in this very Quentin Tarantino way. Me standing in the bathroom with the three Charlie’s Angels friends: the smell of elementary school toilets, the sour yellow of the light reflecting off the tiles, the buzzing of the overhead fluorescent bulbs.

Someone snorts.

Kelly pulls her switchblade comb/brush out of her pocket, and opens it >CLICK< and slowly combs back her feathered hair. Jill pulls out the Bonnie Bell rollerball bubble gum lip gloss and slathers her lips >SMACK<.

Sabrina turns to me and says, “No. We don’t know anyone re-tard-ed.”

And third-grade me can’t help but think, your parents are dah-vorced, for god’s sake! Your Dad doesn’t even live with you! I mean, everyone knows retarded, right?

Then suddenly it all snapped into place. I pictured all the homes in all the neighborhoods, a satellite view, and I realized that every fifth house or so does NOT in fact have a retarded brother in it. Contrary to the days we’d spent visiting Butchie at his school with the other people who sometimes drooled or clapped a lot or pinched you or never talked or gurgled when they giggled, we were alone in this.

By middle school I realized that it was also not at all cool. I read it in a note that R.G. threw to C.H. about how weird me and my family were. And retarded. I stood alone on the playground for a couple weeks until I worked it out, found new friends or did something cool. Also, I figured out that I needed Bonnie Bell lip gloss, Nike sneakers and feathered hair. Also, maybe the rainbow suspenders were not such a great idea. But I digress.

Christmas.photo.1981

Christmas photo, 1981

In high school, sitting on the bus my freshman year, someone said something about a tart cart. This I thought was funny. Those short buses? They looked like toasters where you toast pop tarts, hence, tart carts, right? HAHAHA! Until my forever-friend Janice turned to me and gently said, “No, Jen. It’s because of the word re-tard-ed.” But that doesn’t even rhyme, Janice. Tard card?! Are these people stupid?!

And that was it. Somewhere close to right about then I decided that I was taking the word back.

I had a brother and he was severely retarded. That’s what the doctors said 50 years ago. That’s what it said in his medical records.

I have to say, he wasn’t developmentally delayed, like there was something he’d catch up with. And he wasn’t disabled, like a tractor trailer on the Schuylkill Expressway. He was retarded, like a momentary ritardando in music, rit. or ritard., when the music slows waaaay down and you breathe deeply and then ease through the moment, listening more closely, feeling it a bit differently. Things are suspended in that moment. S-ussss-pen-deeeeeeed. (Whisper it. S-ussss-pen-deeeeeeeed.)

In a recent TLC documentary about “Benjamin Button” disease (http://abcnews.go.com/Health/40-year-child-benjamin-button-children-grow-age/story?id=12724960) they feature a young man named Nicky Freeman. In one shot there is a time-lapse moment where people rush, rush, rush around him and he sits perfectly still for what seems like hours. My brother had an unbalanced translocation (trisomy 12X21) not Benjamin Button disease, but it was that stillness, that startling sense of possible wisdom, the ritard. in the music, well, that moment in the documentary took my breath away. My brother had that childlike beauty, could possess the inner stillness and sense of knowing something more important (when he wasn’t pulling my hair, clapping his hands at Woody Woodpecker or stealing food.)

I dated a lovely boy in college who had a lovely sister who had severe developmental and intellectual delays. When I met her she and I played with one of those toys where you slide the wooden beads back and forth over coiled metal wires. Back and forth. Back and forth. Back. and. forth.

He talked about the things his mom was doing to catch her up; diet, therapy, specialists, homeopathy, allergists. His mother was going to solve this thing going on with her daughter. Maybe she’d go to college someday. A little bit I felt guilty. We never tried to catch Butchie up to anything. We tried to keep him alive and eating and walking and hopefully using the toilet. But a little bit I felt annoyed. She is who she is. She was the youngest in their very brilliant family. When she was born they maybe expected something different. In our house Butchie was born first. Maybe he expected something different.

So when you say, “That’s so retarded,” around me and you’re an adult (like the school diversity coordinator who once said that to me… seriously), I’ll say, “Some of the nicest people I know are retarded.” And if I teach you I will tell you about my dear brother on the first day of school and then if you ever say, “This picture I drew is so retarded,” or “I’m so retarded,” you will either stand on one foot for a minute or run around the building, depending on the location of the classroom. And if I coach you, you’ll do push-ups. That word is not your word unless you are using it to describe something unique, dear, complicated.

For me, Butchie was and always will be retarded, not a person with severe developmental delays. Ritardando, ritard., rit.: a reminder to be patient, to be exactly who you will be, to slow down, to stay in the moment, to breathe, and to listen more closely to the music.

Butchie mixed media by Jennifer Groeber

Butchie
2003
latex, collage and graphite
48 x 36″
by Jennifer Groeber

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31 comments on “I love the word retarded, and it’s a complicated love.

  1. dvb415
    November 16, 2013

    I feel compelled to respond to all of your writing because it is so, so good. The words, the artwork, the music, the message(s)…just amazing

  2. jgroeber
    November 16, 2013

    Thought you’d appreciate the “ritard.” It’s amazing how our lives are filled with understandings and inspirations that come from music, right? Thank you for the kind words. (And the musical education.)

  3. jmlindy422
    November 17, 2013

    This is beautiful.

    • jgroeber
      November 18, 2013

      Thanks so much for reading. Always hoping the love comes through (and the beauty) more than the crazy. Although, the crazy is pretty hard to avoid. Please, come visit again!

  4. Jennifer Borden
    November 17, 2013

    You continue to blow my very fuzzy socks off!!!!!!!

    • jgroeber
      November 18, 2013

      Fuzzy are the very best kind of socks, so a fuzzy thank you to you for reading. Really. Thank you!

  5. Kelly
    November 19, 2013

    SO much love in this post. Thank you for writing it. Thanks a bunch.

    • jen groeber
      November 30, 2013

      How am I just now seeing your comment?! I am such a tacky new-blogger. That’s twice this week I’ve found lost comments floating in the ether. Thank you for reading the post and for getting it. Really. It means a bunch.

  6. byerlyj1
    November 27, 2013

    Reblogged this on DIFFERENT, LIKE YOU..

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  8. Perfection Pending
    February 8, 2014

    I love this Jen. You capture everything so beautifully. And, this is a word that I have been trying to take out of my vocabulary. There just is no excuse for it, and I love how you shared how personal it is to you.

    • jgroeber
      February 10, 2014

      Thanks, Meredith!
      In my early years of teaching I had a mother show up to help me coach and she misused the word retarded. The whole team got silent and then quickly moved to the next drill. For everyone there it would normally have been ten push-ups, but in that moment I felt really bad for that Mom, who was way older than me so I didn’t say anything. That evening she dropped by my apartment with a little bouquet of flowers. Her daughter had talked severely to her in the car and she wanted to apologize. I had taught the kids who then taught their parents! When does that ever happen. Anyway, I do still love the word, because it’s how I think of my brother (and gently slowing music.) It’s nice to take it back, one blog at a time. 😉

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  11. Margie S
    March 26, 2014

    You are awesome, this was awesome!

    • jgroeber
      March 26, 2014

      Ha. So glad you appreciated it. Such an important part of my childhood…

  12. Tandi
    April 19, 2014

    Thank you for this. Your story is powerful and I can just imagine that silent slowed down place you describe beautifully. But, may I ask, what happened to Butchie? I would love to hear more about him.

    • jgroeber
      April 20, 2014

      Thank you for finding this one and reading it. It’s near and dear to my heart, as is my brother, Butchie. He passed away two years ago at 60. It was such a quietly heroic life lived that the funeral was equal parts tears and laughter. I should make him a category unto himself; he comes up in My Mother’s Letters, Lederhosen and a few others.

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This entry was posted on November 16, 2013 by in Memory, This One Contains Art, Uncategorized and tagged , , , , , , .

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